Dear Cancer, I HATE you and I THANK YOU.

If cancer has affected your life, read this blog post.

If cancer hasn’t affected your life, read this blog post.

 Because it matters.  Epic shit matters.

Loving, sharing, helping, hugging, caring  for someone with cancer is epic shit.

And it matters.

*

Disclaimer : This is the longest post in the history of the world.

 Go grab yourself a pot of coffee or a humongous bottle of wine.  You will need it.

No coffee? No wine? Tequila shooters will work in a pinch.

 Same Same but different.

Do you want to know what cancer feels like for a patient or anyone who loves someone with cancer?  It’s a caffeine high of heart thumping madness mixed with the sting of a tequila hangover.  Minus the good times of the tequila.

CANCER is a roller coaster ride of emotion, love and laughter mixed with …

a whole lotta throw up.

This blog post is about ….

A journey of cancer.

It is politically incorrect.

Slightly offensive.

Somewhat of a Debbie Downer depressing.

And it has a happy ending.

Kind of like a hooker.

Cancer is a tricky little dude to write about.  Finding the words to write is like writing a hot sexy love letter while sitting beside your Grandma…..But worse…..It’s impossible.

 I know.  I tried.  Epic fail.

What’s the big deal about writing about cancer?

 Surely, if I can hurl an acorn at a squirrel from my treehouse porch …

NOTE : the squirrel hurled the acorn at me first !!!!!!

{ I just screamed those words }

My great escape

 Surely I can write about cancer.

NOT.

 Not easy at all.

I wrote this blog post a bazillion times.

Wrote it.  Scratched it.  Burned it.  Started again.

I’m an expert. I practiced during my childhood with love notes to all the kindergarten boys.

Wrote it. Scratched it. Burned it.  Started again.

It never worked.  Thanks for the tomboy hair cut mom.  THAT worked.

 I remained dateless until 17.

Yup.

 Then…while contemplating this blog post… a brilliant thought hit me.

 The light bulb went off.

{ P.s. I need to grasp these smart light bulb moments, they don’t come that often }

I should write about cancer because

Cancer affects each and every one of us.

Dear Cancer, I HATE you. 

Put your arm up if you know someone who has cancer.  See… look how many of you have your arm up!  Put your other arm up if you know of someone who has lost their life to cancer.  I just know that so many of you have both arms in the air.

Now look around the room you are sitting in.  Everyone around you is wondering why in the hell you look so stupid with your arms up in the air.  They probably think you are getting robbed.  Put those arms down.  Or hand me your money.

Now is the time to put those arms to good use.  Go HUG someone.  I will wait for you.

Did you get up from your chair?  Do it.   I know you are still sitting there.

Get up.

HUG. HUG. HUG.

Dear Cancer, I THANK you.

HUG

I believe in HOPE . I BELIEVE in believing : Believing that there is light through all this darkness.  I don’t need to remind anyone that there is darkness in cancer.

It is so very sad

It is so very scary

It makes you cry

It makes you cry the kind of tears that come out of your nose.  Not the pretty super model cry. A REAL cry.  Hyperventilate into a bag.  CRY.  Can’t catch your breath.  CRY.

Cry like you have never cried before.  CRY.

* It tugs at the deepest parts of you that you didn’t even know existed * It shatters your belief system * It makes you doubt * It uproots you in ways that you didn’t even know could happen * It confuses everything *  It is scary as hell * Yes * I said that already *

* It is scary as hell *

Dear Cancer, I HATE you.

SHINE LIGHT

 The secret in the cancer fighting sauce is to outshine it with light.

But that secret sauce alone, just isn’t enough.  If one more person tells me that having a positive outlook on life is what can save someone from dying of cancer – I will drop kick them AND bitch slap them all at once.   OK,  I would at least trip them.  I have learned, over my lifetime, that a positive attitude is not enough.  It is essential.  It it beautiful.  It is full of awesomeness, but that alone is just not enough.

Read. Listen. Learn. Love. Laugh

A positive outlook, some magic juice mixed with some vitamins, aromatherapy oils and good old fashioned great attitude will not save you from dying from cancer.  When I hear that theory I want to tell people :

They can just shove that theory right up their whahzoooooo.

You can quote me on that.

When all else fails….Call your girlfriend.

Before you jump through the computer and tell me that I am wrong.wrong.wrong….I am going to tell you that I am the boss of this blog.  LOL.  I can write whatever I want.  I tell that to my kids all the time.

You are the boss of you.

Except if they attempt to text at the dinner table.

Then, I am the boss of them.

 Just sayin’.

Mouth-piece of laughs

*  I do believe in filling our bodies with health, nutrition, vitamins, minerals and a lot of water  *  Copious quantities of water  *  I do believe in aromatherapy  *  Mostly because it smells so damn good *  I believe in trying alternative medicine * I believe in praying * I believe in loving life * I believe in doing everything humanely possible to live live live *  I believe in learning how to laugh, cry and sip your wine without it coming out of your nose * (P.S.  That is a cancer survival skill  )

It is still not enough.

*

We need each other.  We need a small village of support.  We need to stick together like glue.  Without it, we become…well…unglued.  We fall apart at the seams.

 We need a support system beyond belief.  We need modern medicine. We need our friends.  Our family. Our children.  Doctors.  Nurses.  Complete strangers.  Health care workers.  Wine.  Tequila.  Whatever floats your boat.

*

Dear Cancer, I THANK you.

*

I THANK you for the beautiful moments

 We need to hug each other more often.  We need to recognize that sometimes the smallest, kindest move is MONUMENTAL to another soul.

Even if we HUG with our words.

But is it enough?

*

Is it really enough????!!!

*

www.lynneknowlton.com

I have known and loved so many beautiful souls with cancer.  Each one did all the right things and yet….they died.  I have also met others who have smoked like a chimney and drank like a fish and lived to be 102 years old.  Cancer can be like Russian roulette.  You never know when the gun is loaded and who it’s going to shoot.  There can be no rhyme or reason.

So why not try a paradigm shift ? Through the sadness, find some fun.  Honour the sad moments and cry.  Then leave them behind you and find some great ways to make the best of the journey.   Why not just suck it up and have a great time?  Hoot and holler and embarrass yourself.  Who cares?

*

You know all those things you’ve always wanted to do?

 You should go do them.

*

LIVE LIFE or DIE TRYING.

Life is about the journey not just the destination.

Why do I feel this way? Because I have lived my entire life in the sidelines of cancer.

The observant.

  • When I was a little girl, my Nana died from cancer at the age of 52.  She stood tall.  She was beautiful.  She loved my Pop and she loved living her life.  She had already lost her Mom and her sister to cancer.

Dear Cancer, I HATE you 

for taking the helm of our family ship.

  •  Shortly after, my Mom was diagnosed with breast cancer.  She was a young 26 year old Mom at the time.  My Mom is now a senior. She will KILL ME for writing that.  She is a three time cancer survivor.   I have watched and listened and felt the impact of what it is like to fight cancer with all you’ve got.  My mom is not a survivor of some wee little cancer dot on her toe. My Mom had serious ass cancer. The kind of cancer that kills women every.single.day. That’s my Mom.  She made it.

Dear Cancer, I THANK you 

for the blessing and privilege of letting me keep my Mom.

  • I lost my wild-crazy butt-nutty-Harley man of an Uncle to cancer.  My Uncle Mark loved his family, his friends and his Harley.  He was the coolest thaaaang my family ever had the privilege of being a part of.  He was a biker, but not a gangsta.  He loved the ride of the open road.  Leukemia ravished his body until he couldn’t fight anymore.  He gave it his ALL.


Dear Cancer, I HATE you.

  • I lost my Uncle Keith to cancer.  He loved his Aussie life, my Auntie, his family and friends.  A cancerous brain tumour took his life.  It stepped in fast, and overtook him before he could even begin to wonder what cancer was all about.  He loved helping other people.  Loved it with all his heart.

Dear Cancer, I HATE you.

  •  My Uncle Marty was recently diagnosed with Multiple Myeloma.  He has already lost his two only brothers to cancer.  Seriously?  Does this ever stop?!

Blog post update : Sadly, we lost my Uncle Marty on Nov 25th, 2012 after 8 short months of having Multiple Myeloma. You may read about that here : When cancer takes the life of someone you love.

Are you starting to wonder what kool-aid my family has been drinking?  Think again.  This happens every single day.  We are not alone.  There are millions out there. Biz-millions. Trillion gajillion billion-hood of millions.  So cancer, you can suck it.

  • Last but not least, my husband Michael.  He was diagnosed with a one in a million cancer.  He was 46 at the time.  The chance of diagnosis at his age was .1 in a million. Wtf?!!  Seriously.  That is nut house madness.

Dear Cancer, I HATE you.

 Enough is enough. 

***

My Dad.  My beautiful Dad.

  • I still can’t write the words to express the loss of my Dad.  You may not know it, but I was a blogger BEFORE I started this blog.  My previous blog was my chance to make an ass of myself when only my dog and 3 friends followed it.  The day I shared his funeral announcement on my past blog was the day that my blogging voice died.  The loss of my Dad was the biggest blow of my lifetime. He was the roadmap of my life. My Dad lived healthy, loved life, had hope, did every natural and medical option known to man…..and cancer unmercifully took his life.

Dear Cancer, I HATE you and yet, I THANK you. 

I am thankful for the opportunity to say goodbye to my Dad.  I’m thankful to have learned so much from him.

 I’m just thankful that I had a Dad that quite simply, just loved me so very much.

 I’m eternally grateful.

I didn’t write my lifetime of cancer history to make you feel sorry for me.  On the contrary.  I shared the story to share with you that you are not alone.  We are all in this together.  We can choose to close our eyes to it, or we can choose to find ways to make a difference in the lives of others.

A positive difference.  An epic difference.  Epic shit matters.

Dear Cancer, I thank you. 

I thank you for all the beautiful moments, epic moments and good times.  I am still saddened that good people die.  Friends and family who do everything in their power to live….die.  It happens.  Every. Single. Day.  So now I honour that.  I honour that when someone tells me that they have cancer…. I listen.  I don’t tell them that they will be fine.  That they will beat it.  I think that it makes them feel small to say those words.  As if what they are doing is not enough.

 Because if they don’t beat it,  they failed (??!!) 

Well, bull shit.

They WON because they are living a life that they love.

So screw you, CANCER.

Talk. Listen. Care. Share.

Five years ago, we thought Michael could possibly live for 5 years.  That was the median life expectancy for his cancer.

 5 years goes by fast.

 I promise.

Well cancer, take that life expectancy and shove it up your woohoo.

Today… he’s looking mighty fine.  Damn fine.  Hotter than a hot tamale.  Note : To our children, don’t get grossed out.   Grandma even said that about Daddy. Pinky swear it.  I think she even wrote it down on a card when she sipped all that brandy at the last Christmas party.

Shhh.  Don’t tell her that I told you.

Fast forward 5 years.  Yes, we had some scary moments.  I’m not going to go there, because it actually makes me cry. Big FAT tears…CRY.  I have had many moments where I wonder if the man of my dreams will be in my life for long.  Yes, I worry that he will die.  I don’t ever write the words for fear that I will jinx myself.  So high school of me.  Who says that shit?  OMG, if I say it out loud, he may die.

WAIT !!!!…

I just wrote it.

Now I’m screwed.

Then something great happened.

 Michael qualified for a stem cell harvest.

Dear Cancer, I thank you. 

I thank you with all my heart and soul.

What does a stem cell harvest mean?

I will try to put it into real words because when the Doctor explained it to us for the first time, my eyes glazed over from confusion and my brain caught a train to oh-my-Gawd-what-did-she-just-say-land?  

Stem cell collection means : Michael had to have high dose chemotherapy last week.  Big ass doses of chemo that knocked his socks off.  If that dose was blue, he would have pee’d like a smurf.  It was intense.  The chemo is designed to ‘trick’ his body into creating massive amounts of stem cells.  Massive stem cell production takes massive medical intervention.  Massive doses of chemo.  Massive doses of medication to get the stem cells out of the bone marrow and into the blood stream.  Wow, massive words everywhere.

I almost pee’d my pants in this moment. Crack me up.

The magic concoction also had negative side effects.  It made him very sick. His blood counts dropped.  He had fevers.  He vomited for 8 hours straight.  He slept for 2 days.  He  needed medication to prevent damage to his kidneys.  He had to drink some funky liquid to protect his organs.  It tasted like a combination of sheep urine and goat spit.  Ok, I didn’t sip it, but it smelled gnarly.  I almost hurled just pouring it in the glass.  Gross.

 He definitely took one for the team.  I would have chucked it in the garbage pail when no one was looking.

 {I am my fathers daughter}

 His immune system went through a world war.  He needed antibiotics to avoid infection, and had to avoid crowds to protect his immune system.

No crowds ?!!  Too bad.  So sad.  That just meant that I needed retail therapy to shop ALONE.

Me… shop alone?!!

 Dang.

Dear Cancer, I thank you.

I joke.  Not Really.

He then started a 7 day regime of injections to boost his stem cell production.  We needed a home care nurse for the injections.  I get hot flashes when I have to give Michael needles.  I’m having a HOT FLASH just thinking about having to give him a needle.  I’m a turd.

The injections helped his body to create new stem cells and push them into his blood stream.  Massive levels of stem cells.  8 million of them, to be exact !!!!  I am officially calling him the 8 million dollar man.  Shove over, 6 million dollar man.  A new hottie is on the scene.

The STEM CELL COLLECTION machine. How funky is that ?!! Woohoo !!

The good news is that they were able to collect stem cells for a future stem cell transplant for Michael.  It took three attempts, three days, and one final 5 hour sitting to collect the stem cells.  A pretty epic day.  Awesome on all levels of awesomeness.  The whole process of stem cell collection is mind-blowingly impressive and bewildering.

The bad news is that his body has been pretty beat up.  He is tired.  He has lost weight.  His hair will start to significantly fall out.   He will likely lose his hair on his head, his body, but not his eyebrows or eyelashes.  So he will look like a naked snuffleupagus. Do you remember Snuffy’s eyelashes? Epic.  Well at least Michael will have Snuffy eyelashes.

So what did his buddies do?

They got naked.  Sort of.

Head Shave. True friendship. EPIC.

You know what they say ;

If you ignore my muffin top, I’ll ignore your bald spot.

Why did we make this choice for stem cell harvesting and high dose chemotherapy?  Believe me, it was a tough choice based on what he would have to go through, and continue to go through.

As time goes by, the chemotherapy will someday stop working.  

At some point Michael will need to rely on the stored stem cells.  Those stored stem cells are like money in the bank for a rainy day.  Like a sperm bank, but without babies.  Ewwwwwwh, I just grossed myself out.

 The day will come when all chemotherapy and treatment options will simply just run out.  When all the love, the positive attitude and healthy living…. just isn’t enough.  The day may come where love and support and the absolute zest for life may not outweigh the weight of cancer.  A day where every option has been exhausted. When that day comes…. he will have the last resort treatment of a stem cell transplant using his own stem cells.

 It is the rabbit that they can pull out of a hat.

Minus the rabbit.  And the hat.

It is stem cells.  And a great guy.  Love that combo.

That is good enough for me.

 

So before you say…have hope, think positive, all will be well, he can beat it…… think again.  We do have hope. We do think positive.  We do every single thing possible to LIVE LIFE.  

We don’t make cancer our story.  It isn’t our story.  It is just there.  

Cancer is like having a monkey on your back.

Sometimes he messes with your hair.

Sometimes he jumps on your shoulder.

Sometimes he plays games.

Sometimes he just shits on your shirt when you least expect it.

Sometimes he just makes you LAUGH.

Breathe it all in

Love it all out.

And do epic shit.  Because it matters.

Lynne

 

 

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259 Responses

  1. Kerry Phillips, Maui, HI says:

    Thank you for sharing your story with me. I have cancer (cholangiocarcinoma) and I was feeling shitty so I Googled “I hate cancer”. It brought me to your blog and was exactly what i needed to read. So Thank you for bringing me here….but just so you know cancer, I still hate you.
    Kerry Phillips
    Maui, HI

  2. Maighen says:

    Well, I found your site from a link on Treehugger (they were ogling your fab treehouse, natch), but I looked deeper when I saw the current topic of our own family floating around the pages: cancer. My mom is in the second round of chemo + a trial drug for Primary Peritoneal Carcinoma (nearly identical to the most common form of ovarian CA since they share tissue types, but much more rare), and this is her second battle with the beast. She was given radiation for cervical cancer when I was 11, and now 20+ years later she’s dealing with a cancer that may have been caused by the very radiation that had once saved her life. Figures, eh? Ain’t life all ironical and s#!te?!

    Needless to say, we recently celebrated her 71st birthday at a local spring “Germanfest” by noshing massive amounts of things ending in “-wurst” and drinking a plethora beers with umlauts in their names while watching full grown men hop around in their shorty-shorts and overalls to an oopma-loopma sounding band. Not a bad way to tell cancer to eff off if I do say so myself. She’s the youngest looking/acting/feeling 71yr old I know (and I know a lot being an ER nurse aka pit-stop crew boss for those traveling the never ending left turns of life), and even with all the crap she’s handling she never ceases to amaze me. We know all about that cancer roulette in our house since she was diagnosed just 4 short months after my long-awaited son was born, and I do mean long.. we tried for 7 years and had given up on infertility treatments when I found out I wouldn’t be delivering a bad gallbladder but a baby in 6 short months. SURPRISE! Ironically I’m adopted because my mom never got pregnant (trust me, there were lots of accusations of her sharing the “barren gene” in my formula there for a while! Ha!), but he truly has been the best medicine for her these past 14 months. Best for all of us, actually.

    My sincerest hope is that my baby boy gets to remember my mom, because I never knew it was possible for two people who aren’t lovers to truly, madly, deeply adore each other the way my son and mom do one another. Their eyes light up the entire room when they’re playing with each other, and my son practically has a spastic fit every time we take him to visit his beloved Nana, running through the front door clapping his hands wildly and screeching in his little baby voice his excitement to see her again. If I could capture that energy, that spirit and keep it in a bottle for him I would cross oceans of space and time to find the contraption necessary to procure and encapsulate it so he remembers her completely.

    I just realized as I sit here bawling and typing feverishly to a complete stranger that the only time I ever let myself cry about my mom is when my boy is asleep and my husband is out of town like he is tonight. I’m not sure if that’s a good or bad thing, but it is definitely a releasing thing this time around. :) Many long, happy, memory-filled decades to your husband, you children, and you. I have a sleeping baby I must go snuggle post haste!

    -Maighen

  3. J.ulia says:

    Wow you are amazing! my husband has a very unfriendly throat cancer who apparently likes to keep visiting and outstayiing his welcome 3 months post treatment waiting on results of abnormalities shit bum bolllocks. Tonight was almost choking on keeping it together and read your blog. So refreshingly honest and true. Bless you for your pain and strength there you get me and my cancer liberation of expression.. I love love love your blog you are fantastic julia xxxxx

    • Thanks soooo much Julia !! You made my day. My week. My month :) . Really !

      So sorry to hear that your hubby has cancer too. Sometimes the WAITING on the results can be more painful than the results. It is excruciating to wait, isn’t it? I hope you and your hubs kick cancer in the ass. That is what it deserves. A swift kicker to the curb.

      You go girl ! Big girly hugs !! xx

  4. Ann W. Long says:

    I was diagnosed with breast cancer in 2009. Had all the treatments chemo radiation and herceptin. Many fabulous people have crossed my path with cancer driving their life’s journey. I think I have been one of the lucky ones. I am still here and I have found everything matters…verses my old attitude that nothing matters. I stumbled on your blog wanting to make the grapevine “balls”. Then I continued to read. If it isn’t fun “I am not going to do it….” lots of new words from you to describe my new journey. Have fun- live big -live better……now finding a way to live with epic ideas. I love to do everything!!! Like you! I learned to loose myself in Pintrest also! Lists of things to make!!!! God speed to your husband. I can tell he will live long with all the love surrounding him.. Another list: :pray for the crazy loving creative Canadian family and their Daddy. God speed from Tennessee. Ann

    • Dear Ann

      I loved love loved loved your note/comment. What a great journey you are on too. It is nuts how cancer can change your perspective… even if you had a great one to begin with.

      Opening our eyes and hearts to the fun of it all is where it’s at. It isn’t always easy. Sometimes we cry, sometimes we have a downright pity party, but in the end.. we try to have some fun.

      Thank you so much for sending the love and prayers. Right back-atcha from one Canuck to a lovely awesome gal in Tennessee. They sure make great folks in Tennessee :)

      Much love,
      Lynne !


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